National Involvement Standards
The 4Pi National Involvement Standards have been
developed by the National Involvement Partnership
(NIP) project, a partnership of organisations hosted by
the National Survivor User Network (NSUN).
Use 4Pi National Involvement Standards
Language of Mental Wellbeing
Service User Involvement in Health and Social Care Policy
evaluation of a pilot project of Patient and Public Involvement
in research at Parkinson’s UK
Roadmap for Patient + Family Engagement in Healthcare Practice
and Research, Practical strategies for advancing engagement
for Healthcare Research and Quality (AHRQ): Guide to Patient
and Family Engagement in Hospital Quality and Safety
Commission on Safety and Quality in Healthcare: Engaging Patients
in Communication at Transitions of Care
for Public Scrutiny (CfPS)
A report submitted to the Winston Churchill Fellowship Trust,
May 2014. By Hilary Boyd, Project Manager Co-design,
Auckland District Health Board.
DEEP guides aim to support the involvement of people with
of New Models for Collection and Use of Patient Experience
Information in the NHS
a patient and public involvement panel for quality improvement
An initiative launched in Wales in Jan 2008 to campaign for
improving the care of older people in hospitals.
Patient Ambassador Programme (EPAP)
EPAP is a free online self-learning programme for anyone affected
by a chronic condition, interested in patient representation
This toolkit outlines a powerful and proven way of improving
patients' experience of services, and helps you to understand
how it can help you meet your aims.
Reform publishes new research exploring how patients can be
more engaged in their health and more involved in their healthcare.
The report argues greater patient engagement could both improve
outcomes and reduce costs.
the challenge of health research priority setting in partnership:
reflections on the methodology used by the James Lind Alliance
Pressure Ulcer Priority Setting Partnership
for person-centred care
National Voices has launched Evidence for Person Centred Care,
which offers an easy digest of the best international evidence
on ways to enhance person-centred care. .
A new website provided by the Scottish Health Council which
allows health professionals involved in patient focus and
public involvement projects to share their experiences of
Patient Focus and Public Involvement (PFPI) and to learn from
initiatives from across the country.
Clinical Commissioning Group Engagement and Experience
on improving patients' experience of cancer care
This introductory guide will help cancer teams and professionals
at all levels within a Trust to drive continual improvement
in patient experience, using tried and tested tools and techniques.
to Appraising Health Information
This Guide is about assessing the quality of information,
and the processes used to develop it.
to Producing Health Information for Children and Young People
This resource, produced by PiF,aims to help anyone who communicates
with children and young people about their health improve
what they do, and shares practical advice as well as examples
of current best practice in the field.
Services Co-design: Working with patients to improve healthcare
It provides a range of flexible tools for working effectively
with patients in service improvement work. While the focus
is on patients themselves, the tools can be equally applied
to other groups such as frontline staff, family/whanau, and
Healthwatch England is the national consumer champion in health
stop choking project, Belfast Health and Socia Care Trust
to guidance, East Midlands Academic Health Science Network
healthcare through the use of co-design, New Zealand Medical
for Patient and Family-Centered Care
A national advisory group which aims to promote and support
active public involvement in NHS, public health and social
A resource for the research community, which contains guidance
and examples of best practice on how to engage and empower
Patient Research Ambassadors.
service users and carer in your teaching and assuring quality
in health information.
Self help Nottingham produced an online learning resource
aimed primarily at lecturers.
and assuring quality in health information.
PiF has launched new web content on judging and assuring quality
in health information.
Well with Dementia: A Participation and Engagement Programme
for People with Dementia and their Carers - Development and
Council for Palliative Care
The only website dedicated to involvement in end of life care,
provides resources for professionals and offers opportunities
for people to get involved or share experiences of user involvement.
Leeds West CCG Patient Leader Programme
(Patient and Community Engagement Research) Program
The PACER program works to create the partnerships and infrastructure
needed to transform the role of patients and families in health
and health culture experience.
'Evaluation of public involvement in research: time for a major re-think?'
'The significance of Health and Social Care Sector involvement
for Scottish chronic pain patients'
and public involvement in quality improvement
The Patients Association is a long established independent
charity for health and social care.
and Public Involvement: Resource for Researchers
Parkinson's UK has launched the resource as part of an on-going
project to increase the support they provide for researchers
to effectively involve the perspective of patients and carers
Patient Voice South offers support and networking opportunities
for anyone promoting patient and public participation in the
design and delivery of healthcare.
toolkit 'Creating health information that works'
and Family-Centred Care toolkit
In partnership with the Health Foundation, the King's Fund
has launched a new online Patient and Family-Centred Care
Learning Disabilities Resource List
PiF's Learning Disabilities Resource List collates research,
guidance, best practice and further contact details.
care resource centre
The resource centre, launched by the Health Foundation, is
designed to help healthcare professionals implement a more
person-centred healthcare service, where people are supported
to more effectively manage and make informed decisions about
their own health and care.
This site has been developed to bring together a range of
resources to support the development and implementation of
a personal outcomes approach in health and social care.
& Public Involvement Reading and Resources, Patient and
Public Involvement Solutions Ltd
College of Paediatrics and Child Health - Patients and the
Guides to Engagement
Originally aimed at CCGs, they will be of interest to anyone
who would benefit from working more effectively with patients
and the public.
change - A guide to enabling the spread of person- and community-centred
approaches for health and wellbeing
Point of Care Foundation
The Point of Care Foundation works to improve patients
experience of care and increase support for the staff who
work with them.
Local Act Personal: Ten Top Tips for Co-production
Involvement in Voluntary Organisations - Shared Learning Group
The User Involvement in Voluntary Organisations Shared Learning
Group (UIVOSLG) aims to encourage shared learning about user
and/or carer involvement between medium and large voluntary
sector organisations working within the UK.
Involvement with the Macmillan Cancer Improvement Partnership
How to get involved with the Macmillan Cancer Improvement
Partnership, ways to be involved and the type of support the
programme can offer.
The Voices Scotland programme is delivered by Chest Heart
& Stroke Scotland (CHSS). It has built a national network
of people affected by chest, heart and stroke conditions to
help them have their say.
Together: A toolkit for health professionals on how to involve
Developed by West of England Academic Health Science Network.
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