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Home > Resources > Subgroups resources
Subgroups resources
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In this page we have included web resources that might be helpful for members of the CHAIN sub-groups. The links are mostly provided by the facilitators and CHAIN members. CHAIN is not responsible for the content or reliability of the linked websites.  

Click on any of the subgroups below to access the relevant resources.

arrow  Bereavement & Loss
arrow  Cancer services & support
arrow  Clinical Audit
arrow  Dementia
arrow  Equality & Diversity
arrow  Quality Improvement
arrow  Health & Wellbeing (Obesity SIG; Cycling for H&W SIG)
arrow  Leadership
arrow  Mentoring & Coaching
arrow  Networks & networking
arrow  New Technologies
arrow  Nurses, Midwives & Allied Health Professionals in clinical academic research
arrow  Patient and Public Involvement/Improving Patients' Experience
arrow  Patient Safety
arrow  Prison & Forensic Health
arrow  Self-care management of long-term Conditions
arrow  Service Improvement among allied health professionals

 

Bereavement & Loss

arrow Family Bereavement Network in Europe

arrow Grief at work
This website comprises advice on developing bereavement policies, responding to suicide in the workplace, and a series of best practice guidelines for managers on how to support employees who are bereaved.

arrow International survey of bereavement care provision in Europe
EAPC Bereavement Taskforce publishes largest international survey of bereavement care provision in Europe

arrow Support Around Death
This NHS Education for Scotland website aims to support healthcare staff who are working with patients, carers and families before, at, and after death. It provides key information on the clinical, legislative, and practical issues involved.

arrow Talking about bereavement
"Talking about bereavement" is for people who have recently been bereaved, for their families and friends, and for people who want to know more about the subject.

arrow The National Council for Palliative Care: Life after Death: Six Steps to Improve Support in Bereavement

arrow Working with children pre-bereavement
A toolkit developed by Macmillan Cancer Support for professionals working with the children of patients.

 




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Cancer servcies & support

The Cancer servcies & support sub-group is supported by Macmillan Cancer Support

arrow A guide on improving patients’ experience of cancer care
NHS Improving Quality and Macmillan Cancer Support have joined forces to launch a guide to help trusts improve their patients' experience of cancer care and boost their overall performance.

arrow American Cancer Society

arrow brain trust
a UK brain tumour charity, dedicated to helping people affected by a brain tumour

arrow Cancer Awareness Toolkit
The cancer awareness toolkit has been developed for health and social care staff including: District Nurses, Allied Health Professionals, practice nurses, NHS reception staff, health trainers, managers, pharmacy staff and social care staff.

arrow Cancer, Older People and Advocacy project publication "Every Step of the Way": 13 stories illustrating the difference that independent advocacy makes to older people affected by cancer


arrow Cancer Information Resources
This website contains a wealth of cancer information resources in various languages and accessible formats that are not widely available.

arrow Cancer in the Community e-learning course
The Royal Marsden School in collaboration with HEE South London has designed an e-learning programme to provide an overview of the key issues in cancer care and to raise awareness of them.

arrow Cancer Services Collaborative 'Improvement Partnership'
A national NHS Programme that supports local cancer service teams (Networks) to improve their cancer and diagnostic services and help reduce their waiting times

arrow Information And Support Services

Resources for cancer information and support service managers, staff and volunteers.

arrow International Cancer Benchmarking Partnership

arrow Leukaemia CARE

arrow Local Cancer Intelligence (England)

arrow Lymphoma Association

arrow Macmillan Cancer Support resources
Free resources from Macmillan Cancer Support

arrow Macmillan Learn Zone
Learn Zone provides free and easy access to a wide variety of learning resources, online courses and professional development tools from Macmillan Cancer Support.

arrow Mesothelioma Prognosis Network
Organization works to provide free information and resources to patients and families affected by mesothelioma cancer and other asbestos-related illnesses.

arrow NIHR Journals Library collection in palliative and end of life care

arrow Palliative and end of life care Priority Setting Partnership – final report

arrow The People Behind Cancer Care - patient and staff stories
Report from Macmillan Cancer Support

arrow Understand cancer - a free online learning course on cancer for non clinical staff




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Clinical Audit

The Clinical Audit sub-group is sponsored by the Healthcare Quality Improvement Partnership (HQIP), which runs the national and local clinical audit programmes on behalf of NHS England, the Welsh Government and, with some individual audits, also funded by the Health Department of the Scottish Government, DHSSPS Northern Ireland and the Channel Islands. See sub-group resources page for links to clinical audit resources for clinicians, patients, clinical audit staff, healthcare managers, researchers and other information professionals

arrow Healthcare Quality Improvement Partnership

arrow National clinical audits & registries

arrow Clinical audit resources & training

arrow Patient & public involvement

arrow Clinical audit news



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Dementia

arrow Alzheimer Europe - updates on new publications and resources

arrow Alzheimer Society

arrow Alzheimer Scotland Dementia Research Centre

arrow Alzheimer's Research UK

arrow A better way to care: Safe and high-quality care for patients with cognitive impairment (dementia and delirium) in hospital

The Australian Commission on Safety and Quality in Health Care has developed three resources to guide health service managers, clinicians and consumers in improving care of people with cognitive impairment.

arrow Age UK Salford’s Dementia Support Service - An information manual for staff working alongside people living with memory problems and dementia

arrow Behaviour Management – A Guide to Good Practice: Managing Behavioural and Psychological Symptoms of Dementia (BPSD)

arrow Dementia Core Skills Education and Training Framework

The new National Dementia Core Skills Education and Training Framework is a new resource to support health professionals and educators working with people living with dementia.

arrow Dementia: immediate post diagnosis support guidelines

The London dementia strategic clinical network has created guidance for professionals to support people with dementia and carers immediately following diagnosis.

arrow Dementia related resources from CareSearch

These searches use the Dementia filter developed by CareSearch. It retrieves all English language articles of relevance to dementia within PubMed. The CareSearch website is funded by the Australian government and has evidence based information for anyone affected by the need for palliative care or for anyone who is providing palliative care.

arrow Deaf People with Dementia Research Project

This site provides information on a project and follow-up activities concerned with dementia in the British Sign Language community.

arrow Dementia Guide for Carers and Care Providers

arrow Dementia Partnerships

A specialist knowledge portal, bringing together Networks, organisations, groups and individuals to share knowledge and learning to improve services and promote living well with dementia.

arrow Dementia Peer Support Resource Packs

arrow Dementia Roadmaps

The Dementia Roadmap provides high quality information about the dementia journey alongside local information about services, support groups and care pathways to assist primary care staff to more effectively support people with dementia and cognitive impairment, their families and carers.

arrow Developing supportive design for people with dementia

arrow Finding Patience

Health Education England (HEE) has developed 'Finding Patience', a new film looking at the experience of dementia amongst African Caribbean families.

arrow Free online course: Understanding Dementia

The University of Tasmania's Massive Open Online Course (MOOC), Understanding Dementia, is a 9-week online course that builds upon the latest in international research on dementia. It's free and anyone can register

arrow Innovations in Dementia CIC

Innovations in Dementia is a community interest company. They work nationally with people with dementia, partner organisations and professionals with the aim of developing and testing projects that will enhance the lives of people with dementia.

arrow Irish Hospice Foundation - Prompts for practice for healthcare staff - End of life care for people with dementia

 

arrow Irish Hospice Foundation - Building Consensus for the Future
The report explored the palliative needs of people with dementia and signposted a national direction for Dementia Palliative Care in Ireland.

arrow Irish Hospice Foundation - Planning for the Future Project
The report describes a nurse-led project completed in a Dementia unit which explored how healthcare staff can initiate end of life care for people with dementia.

arrow Irish Hospice Foundation - Facilitating discussions on future and end-of-life care with a person with dementia
This is aimed to support healthcare staff in all settings working with people with dementia.

arrow Jenny's Diary
a resource to support conversations about dementia with people who have a learning (intellectual) disability

arrow Join Dementia Research
This new national service allows people to register their interest in participating in dementia research and be matched to suitable studies in their area.

arrow Literature Review and Needs and Feasibility Assessment of Services for People with Younger Onset Dementia

arrow Memory-Friendly Neighbourhoods

Memory-Friendly Neighbourhoods is a new knowledge exchange programme exploring how local communities can support people with dementia.

arrow Mental Health Dementia and Neurology Intelligence Networks

arrow Models of Dementia Assessment and Diagnosis: Indicative Cost Review Neighbourhoods
This report identifies and reviews in detail three models of dementia assessment and diagnosis currently being used in dementia care in England.

arrow National AHPs Best Practice in Dementia network

arrow New resources from the Alzhimer Society of Ireland

arrow Research article 'A tool to support meaningful person-centred activity for clients with dementia – a Delphi study'

arrow Scottish Dementia Clinical Research Network

arrow Supporting carers of people with dementia highlight

Research funded by the NIHR is helping the NHS to better understand and support the needs of people caring for those with dementia. A number of key studies have been brought together in a new Highlight from the NIHR Dissemination Centre.

arrow Talking about dementia and dying: a discussion tool for residential aged care facility staff

arrow The Dementia Challenge

arrow The Dementia Evidence Toolkit

A comprehensive online database featuring the latest scientific evidence on what works in dementia care and treatment

arrow The Dementia Training Study Centres

The Dementia Training Study Centres website has an Australian focus but has significant education and resources

arrow The Learning Location

Developed by the East of England Dementia Alliance, providing quality training tools and resources for those caring for people with dementia

arrow The Triangle of Care Carers Included: A Guide to Best Practice for Dementia Care

arrow This is me - tool for people with dementia receiving professional care

arrow Told in South Yorkshire Life Story Resource Pack

arrow World Dementia Council

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Equality & Diversity

arrow Bridging the Gap: An online health inequalities learning resource

arrow Complicated? Bisexual people’s experiences of
and ideas for improving services

arrow Dementia information for black, asian and minority ethnic (BME) communities)
An Electronic Resources Handbook for CNWL Memory Services

arrow Equality Delivery System (EDS)
toolkit to promote equality and fairness in the NHS

arrow Equality and Human Rights: Putting People at the Centre
An eLearning module developed by NHS Health Scotland

arrow Inclusivity – Supporting BAME Trans People
A 28-page guide with practical tips, guidance, and resources dedicated to supporting the Black, Asian & Minority Ethnic (BAME) trans population of Britain

arrow King's Fund Reading lists on Equality & Diversity

arrow Local action on health inequalities: practice resources
Public Health England has published a series of resources to help local authorities address health inequalities at local level.

arrow Race Against Dementia
Race Against Dementia is an alliance of groups currently providing information and support to people from Black, Asian and minority ethnic communities in the UK.

arrow The RaRE Research Report
LGB&T Mental Helth - Risk and Resilience Explored

 

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Quality Improvement

arrow Health Foundation

arrow Healthcare Quality Improvement Partnership

arrow ISQua, The International Society for Quality in Health Care

arrow Institute for Healthcare Improvement

arrow Health Care Improvement Scotland

arrow Accelerating Healthcare Improvement: Organizational Assessment Tool

arrow A guide to quality improvement methods, by HQIP
This site describes a structured problem solving process used by Toyota World leaders in Quality Improvement.

arrow A3 Process
This site describes a structured problem solving process used by Toyota World leaders in Quality Improvement.

arrow The Business Case for Quality: A Unified Field Theory Applied to Health Care
The site describes Unified Field Theory

arrow Better Knowledge, Better Care RSS Feed Package

arrow British Geriatrics Society (BGS): Standards of Medical Care for Older People. Expectations and Recommendations
This document describes the British Geriatrics Society's recommendations for standards of care for specialist services for older people and those with whom they work.

arrow Improvement Tip: Find "Muda" and Root it Out (Institute for Healthcare Improvement)


arrow Measurement 'how to' guides
NHS Improving Quality has produced two bite-sized guides to support staff in measuring their improvement work

arrow Queue Fever, Part 1, by David Ollier Weber
This is the first part in a two-part series on handling patient flow.

arrow Queue Fever, Part 2, by David Ollier Weber
This is the 2nd part in a two-part series on handling patient flow.

arrow Significant Event Audit/Analysis - 'Changing the Culture in Primary Care'
Powerpoint presentation by Dr Jonathan Stead, Exeter University

arrow Significant Event Audit/Analysis - NHS Eastern Post Graduate Medical Education

arrow Significant Event Audit/Analysis - Patient Plus

arrow Significant Event Audit/Analysis - University of Exeter SEA

arrow Paper 'Effectiveness of Teaching Quality Improvement to Clinicians'

arrow Transforming Care at the Bedside
A unique innovation initiative of IHI and The Robert Wood Johnson Foundation that aims to create, test, and implement changes that will dramatically improve care on medical/surgical wards/units.

arrow Trip - Healthcare Quality
This site will search both the core TRIP content plus 11 of the leading healthcare quality journals.

arrow IHI Innovation Series white paper 'Using Care Bundles to Improve Health Care Quality'

arrow The Science of Improvement ... On a Whiteboard! '

arrow The Health Foundation Patient Evidence Scan 'Quality improvement training for healthcare professionals'

arrow IHI Resources: CMS Partnership for Patients


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arrow Presentations from the Microsystem Festival


arrow Clinical Microsystems : AN EVALUATION
An evaluation of Clinical Microsystems as an approach to health services improvement

arrow Dartmouth Clinical Microsystems Site

arrow Joint Commission Journal of Quality Improvement Microsystems in Healthcare Series (part 1 - 9)

arrow Joint Commission Journal of Quality Improvement 'Clinical Microsystems, Part 1. The Building Blocks of Health Systems' (CHAIN member log-in is required)

arrow Joint Commission Journal on Quality and Patient Safety 'Clinical Microsystems, Part 3. Transformation of Two Hospitals Using Microsystem, Mesosystem, and Macrosystem Strategies' (CHAIN member log-in is required)

arrow Joint Commission Journal on Quality and Patient Safety 'Clinical Microsystems, Part 4. Building Innovative Population-Specific Mesosystems' (CHAIN member log-in is required)


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Health Analysts (SIG)

Organisations

arrow Ireland and Northern Ireland's Population Health Observatory
INIsPHO is housed within the Institute of Public Health in Ireland . INIsPHO aims to support those working to improve health and reduce health inequalities by producing and disseminating health intelligence, and strengthening the research and information infrastructure on the island of Ireland

arrow Association of Public Health Observatories (APHO)
APHO represents a network of 12 public health observatories (PHOs) working across the five nations of England , Scotland , Wales , Northern Ireland and the Republic of Ireland . APHO produces information, data and intelligence on people's health and health care for practitioners, policy makers and the wider community. APHO's expertise lies in turning information and data into meaningful health intelligence.

arrow East Midlands Public Health Observatory Health Intelligence Network
The East Midlands Public Health Observatory (EMPHO) is one of nine regional Public Health Observatories funded by the Department of Health in England .  EMPHO is the regional health intelligence organisation providing information and analysis to support those working to improve health and reduce health inequalities in the East Midlands . The EMPHO Intelligence Network is a Forum for Public Health People who are happy to share their expertise, interests and questions with colleagues.

arrow Northern Ireland Clinical Research Support Centre
To encourage high quality research for patients' benefit within the healthcare setting.

arrow Health Intelligence
Health Intelligence is part of Population Health service within the Health Service Executive (HSE)

arrow Radical Statistics
The Radical Statistics Group, usually abbreviated to Radstats, was formed in 1975 as part of the radical science movement associated with the establishment of the British Society for Social Responsibility in Science (BSSRS). RadStats is now independent of any other organisation. Members are 'radical' in being committed to helping build a more free, democratic and egalitarian society. Members of Radstats are concerned at the extent to which official statistics reflect governmental rather than social purposes.

arrow Welsh Health Analysts Network (WHAN)
The Welsh Health Analysts Network (WHAN) was established during Spring of 2006 following the demise of the PIE (Public Health Information & Epidemiology) group, which gathered every quarter to discuss and share good practice amongst the Welsh analyst community. The WHAN provides an opportunity to share knowledge in the health information and intelligence community across Wales . The network is comprised of the leaders of teams across different organisations in Wales . Its aim is similar to the former PIE group, but with a CPD element, where specialists are invited to present to the Network on their areas of expertise.

Irish data sources

arrow Central Statistics Office Ireland (CSO)
The CSO is the Government body responsible for compiling Irish official statistics. It provides data and information on methodology.

arrow Northern Ireland Statistics and Research Agency (NISRA)
NISRA p rovides basic economic and demographic information for Northern Ireland . The agency also maintains the civil registry.

arrow Irish Social Science Data Archive (ISSDA)
ISSDA aims to ensure a wider access to both Irish and international datasets. It holds an ever-increasing quantity of machine-readable data from surveys and official statistics (such as the Census) and makes them readily available to users in the academic, public and commercial sectors. 

Other

arrow APHO Technical Briefing 3: Commonly Used Public Health Statistics and their Confidence Intervals
This document describes the calculation of common types of statistics used within public health intelligence, specifically: rates, proportions, means and age-standardised rates and ratios.

arrow Presentations from HAISG Seminars

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Lean Thinking in Healthcare (SIG)

arrow Curious Cat Management Improvement library

arrow Gemba Panta Rei
Specialist lean consultancy

arrow Going Lean in the NHS
A short introductory guide explaining how lean thinking can be used to improve productivity, reduce waste and lower NHS costs.

arrow Lean Enterprise Institute
The Lean Enterprise Institute (LEI) is a nonprofit education and research organization founded in 1997 to promote and advance the principles of lean thinking in every aspect of business and across a wide range of industries.

arrow Short introduction to Lean for NHS Trusts

arrow Superfactory - lean consultancy

arrow Article 'Lean machine: Health care follows auto's lead, gears up for efficiency'
This article describes how General motors and the University of Michigan hospital have teamed up to deploy Lean methods and tools.

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Health & Wellbeing

Health & Wellbeing (Special Interest Group: Obesity)

arrow Alberta Centre for Active Living

arrow British Obesity & Metabolic Surgery Society (BOMSS) Guidelines on perioperative and postoperative biochemical monitoring and micronutrient replacement for patients undergoing bariatric surgery

arrow British Obesity & Metabolic Surgery Society (BOMSS) GP Guidance: Management of nutrition following bariatric surgery

arrow British Obesity & Metabolic Surgery Society (BOMSS) Guidance: Post-op primary care management

arrow 'Ethnic differences in parental attitudes and beliefs about being overweight in Childhood'

arrow European Childhood Obesity Group

arrow Guidelines for the follow-up of patients, undergoing bariatric surgery O'Kane et al (2016) Clinical Obesity 6: 210-224

arrow Health at a Glance: Europe 2014
This third edition of Health at a Glance: Europe presents the latest information on health and health systems in 35 European countries

arrow Healthy Living Alliance

arrow International Association for the Study of Obesity

arrow 'Introduction to the Prevention and Lifestyle Behaviour Change Competence Framework'

arrow Let’s Get Moving: Revised Commissioning Guidance'

arrow National Heart Forum

arrow NICE online learning tool on obesity

arrow NICE quality standard 'Obesity in adults: preventions and lifestyle weight management programs'

arrow 'Obesity in the UK: A psychological perspective'
A report published by the British Psychological Society.

arrow Overcoming obesity: An initial economic analysis
A discussion paper by McKinsey Global Institute.

arrow Parental views of children’s physical activity: a qualitative study with parents from multi-ethnic backgrounds living in England


arrow Physical Activity Counselling Toolkit
A toolkit developed by the Alberta Centre for Active living

arrow Public Health England Obesity

arrow Royal College of General Pratitioners: Top ten tips for post bariatric surgery patients in primary care

arrow 'Small Changes'
An article about a social enterprise that focuses on weight management among overweight and obese adults.

arrow 'Service evaluation of the GOALS family-based childhood obesity treatment intervention during the first 3 years of implementation'

 

arrow The BIG chanllenge - A spotlight campaign on obesity research

arrow The Obesity Society

arrow Weight Management Economic Assessment Tool Public Health England has launched a new Weight Management Economic Assessment Tool for public health professionals.

arrow World Obesity Intervention Atlas
An atlas of European projects and interventions for obesity prevention in adults.

arrow WHO European Childhood Obesity Surveillance Initiative

 

Health & Wellbeing (Special Interest Group: Cycling for Health & Wellbeing)

arrow Active Travel Chapter of Bedford Borough Joint Strategic Needs Assessment

arrow BBC news article - Copenhagen's piles of bicycles

arrow BBC news article - Would these five changes actually help cyclists?

arrow BBC news article - How safe is cycling?

arrow Bedford Borough Council - Cycle Parking Design Guidance

arrow Bespoke Study
The Bespoke project is a collaboration between the research teams of the Orthopaedic and Emergency Departments of Barts Health NHS Trust, and with Barts Charity, ITP and mySociety to explore bicycle related injuries in London.

arrow Bike minded - mental wellbeing

arrow British Cycling 'Wise-Words - Cycling and Health'

arrow Cycling and Health, what is the evidence?

arrow Cycling action plan for Scotland

arrow Cycling Scotland

arrow Cycle to work scheme

arrow Evaluation of Galatown Bike Club

arrow Health economic assessment tools for walking and for cycling

arrow NHS Choices 'Benefits of cycling'

arrow NICE guidance: Walking and cycling: local measures to promote walking and cycling as forms of travel or recreation

arrow NIHR funded studies on cycling

arrow Report 'Pedestrian and cyclist casualty trends in Scotland'

arrow Sustrans
Sustrans seeks to make contributions to assist in the development of all official policy and guidance relevant to walking, cycling and public transport.

arrow The Tour de France is coming to town … time to get on your bike
An article by Alan Taylor,University of Nottingham Physiotherapy Lecturer and ex-Tour of Britain rider.

 

 

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Leadership

arrow Alchemy for managers

arrow Charted Management Institute

arrow Faculty of Medical Leadership and Management

arrow Future Leaders Club

arrow Harvard Business Review

arrow Improvement Science Alert

arrow Institute of Leadership & Management - Leadership and management qualifications

arrow Introverted Leadership
A Toolkit for Introverted Leaders and their Coaches

arrow Knowledge Hub - a Bodleian Libraries weblog

This is a Bodleian Libraries weblog developed to be a source of and a direction to, information on leadership, talent management and coaching.

arrow Leadership and leadership development in health care: the evidence base

arrow MindTools

arrow NHS Leadership Academy

arrow NHS London Leadership Academy - leadership toolkit

arrow The Healthcare Leadership Model

arrow The King's Fund Leadership Development

 

 

 

 

 

 

 

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Mentoring & Coaching

arrow Alberta Mentoring Partnership

arrow Association for Coaching

arrow Connect Coaching & Mentoring (Republic of Ireland)

arrow European Mentoring & Coaching Council

arrow International Coach Federation

arrow London Leadership Academy Coaching and Mentoring

arrow London Deanery Coaching and Mentoring

arrow Mentorship for newly-appointed consultants: What makes it work?

arrow Mentorship for newly-appointed physicians: A strategy for enhancing patient safety

arrow Mentoring for NHS Doctors: Perceived benefits across the personal-professional interface

arrow North West mentoring scheme

arrow Oxford Brookes University Coaching and Mentoring Society

arrow Patient Safety in nursing education: Contexts, tensions and feeling safe to learn

arrow RRHEAL Distance Mentoring Guidelines

arrow Royal College of Physicians of Edinburgh mentoring scheme

arrow The Forton Group

arrow The Performance Coach

arrow The Taos Institute

arrow the coaching academy

arrow 3D coaching

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Networks & networking

arrow The Strength of Weak Ties, a paper by Mark S. Granovetter

arrow Networks Leadership Summit VII
“If Networks are the answer what is the question: Rethinking networks”

arrow Re-examining the Paradox of Structure: A Child Health Network Perspective

arrow Positively deviant networks: what are they and why do we need them?

arrow Network Toolkit
The resource is provided by NHSIQ and the University of Leeds and is free.

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New technologies

arrow Centre for Reviews and Dissemination
CRD undertakes reviews of research about the effects of interventions used in health and social care. The centre maintains various databases, provides and enquiry services and disseminates results of research to NHS decision makers.

arrow Health Protection Agency: Rapid Review Panel
The panel provides a prompt assessment of new and novel equipment, materials, and other products or protocols that may be of value to the NHS in improving hospital infection control and reducing hospital acquired infections.

arrow Innov-age
Innov-age is a free quarterly magazine focusing on new developments for the care of older people, investment and research in health and nursing care, with an emphasis on evidence-based practice for older people.

arrow NIHR Devices for Dignity Healthcare Technology Co-operative
Devices for Dignity (D4D) Healthcare Technology Co-operative is a national initiative funded by the National Institute for Health Research (NIHR) to drive forward innovative new products, processes and services to help people living with long term conditions.

arrow QIPP Digital Initiatives Map and Register
The QIPP digital technology team has published an interactive map to help share innovation within the NHS

arrow The Cochrane Collaboration
Improving healthcare decision-making globally, through systematic reviews of the effects of healthcare interventions, published in The Cochrane Library.

arrow The Scottish Centre for Telehealth and Telecare

arrow TITCH

TITCH is a national healthcare technology network that is dedicated to the development of technology solutions to help improve children's healthcare.

arrow Telehealth in Kent
The case study describes how Kent County Council have substantially reduced emergency admissions for patients with COPD and heart failure in their pilot site.

arrow TRUSTECH - The North West NHS Innovation Service

 

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Nurse, midwives & allied health professionals in clinical academic research

arrow Building a Research Career- a guide for aspiring clinical academics (excluding doctors and dentists) and their managers

arrow NIHR Mentorship handbook 'Mentorship For Health Research Training Fellows'

arrow The National Institute for Health Research (NIHR) and Health Education England (HEE) ICA Mentorship and Outreach Programme

arrow The Researcher
The digital publication, created for health researchers by health researchers aims to raise awareness of research careers among nurses, midwives and allied health professionals

 

 

 


 

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Patient and Public Involvement/Improving Patients Experience

arrow 4pi National Involvement Standards

The 4Pi National Involvement Standards have been
developed by the National Involvement Partnership
(NIP) project, a partnership of organisations hosted by
the National Survivor User Network (NSUN).

arrow Summary
arrow Full report
arrow Why Use 4Pi National Involvement Standards
arrow The Language of Mental Wellbeing
arrow The Service User Involvement in Health and Social Care Policy and Legislation

arrow A Roadmap for Patient + Family Engagement in Healthcare Practice and Research, Practical strategies for advancing engagement in healthcare

arrow Agency for Healthcare Research and Quality (AHRQ): Guide to Patient and Family Engagement in Hospital Quality and Safety

arrow Australian Commission on Safety and Quality in Healthcare: Engaging Patients in Communication at Transitions of Care

arrow Centre for Public Scrutiny (CfPS)

arrow Co-design in Healthcare
A report submitted to the Winston Churchill Fellowship Trust, May 2014. By Hilary Boyd, Project Manager – Co-design, Auckland District Health Board.

arrow DEEP Guides
DEEP guides aim to support the involvement of people with dementia.

arrow Development of New Models for Collection and Use of Patient Experience Information in the NHS

arrow Developing a patient and public involvement panel for quality improvement

arrow Dignified Revolution
An initiative launched in Wales in Jan 2008 to campaign for improving the care of older people in hospitals.

arrow European Patient Ambassador Programme (EPAP)
EPAP is a free online self-learning programme for anyone affected by a chronic condition, interested in patient representation and involvement.

arrow Experience-based co-design toolkit
This toolkit outlines a powerful and proven way of improving patients' experience of services, and helps you to understand how it can help you meet your aims.

arrow Expert patients
Reform publishes new research exploring how patients can be more engaged in their health and more involved in their healthcare. The report argues greater patient engagement could both improve outcomes and reduce costs.

arrow Exploring the challenge of health research priority setting in partnership: reflections on the methodology used by the James Lind Alliance Pressure Ulcer Priority Setting Partnership

arrow Evidence for person-centred care
National Voices has launched Evidence for Person Centred Care, which offers an easy digest of the best international evidence on ways to enhance person-centred care. .

arrow Evolving Practice
A new website provided by the Scottish Health Council which allows health professionals involved in patient focus and public involvement projects to share their experiences of Patient Focus and Public Involvement (PFPI) and to learn from initiatives from across the country.

arrow Gloustershire Clinical Commissioning Group Engagement and Experience

arrow Guide on improving patients' experience of cancer care
This introductory guide will help cancer teams and professionals at all levels within a Trust to drive continual improvement in patient experience, using tried and tested tools and techniques.

arrow Guide to Appraising Health Information
This Guide is about assessing the quality of information, and the processes used to develop it.

arrow Guide to Producing Health Information for Children and Young People
This resource, produced by PiF,aims to help anyone who communicates with children and young people about their health improve what they do, and shares practical advice as well as examples of current best practice in the field.

arrow Health Services Co-design: Working with patients to improve healthcare services.

It provides a range of flexible tools for working effectively with patients in service improvement work. While the focus is on patients themselves, the tools can be equally applied to other groups such as frontline staff, family/whanau, and carers.

arrow Healthwatch England
Healthwatch England is the national consumer champion in health and care.

arrow Help stop choking project, Belfast Health and Socia Care Trust

arrow healthtalksonline

arrow How to guidance, East Midlands Academic Health Science Network

arrow Improving healthcare through the use of co-design, New Zealand Medical Journal

arrow Institute for Patient and Family-Centered Care

arrow INVOLVE
A national advisory group which aims to promote and support active public involvement in NHS, public health and social care research.

arrow Involvement4Access
A resource for the research community, which contains guidance and examples of best practice on how to engage and empower Patient Research Ambassadors.

arrow Involving People

arrow Involving service users and carer in your teaching and assuring quality in health information.
Self help Nottingham produced an online learning resource aimed primarily at lecturers.

arrow Judging and assuring quality in health information.
PiF has launched new web content on judging and assuring quality in health information.

arrow Living Well with Dementia: A Participation and Engagement Programme for People with Dementia and their Carers - Development and Evaluation Report

arrow National Council for Palliative Care
The only website dedicated to involvement in end of life care, provides resources for professionals and offers opportunities for people to get involved or share experiences of user involvement.

arrow NHS Leeds West CCG Patient Leader Programme

arrow PACER (Patient and Community Engagement Research) Program
The PACER program works to create the partnerships and infrastructure needed to transform the role of patients and families in health and health culture experience.

arrow Paper 'Evaluation of public involvement in research: time for a major re-think?'

arrow Paper 'The significance of Health and Social Care Sector involvement for Scottish chronic pain patients'

arrow Patient

arrow Patient and public involvement in quality improvement

arrow Patients Association
The Patients Association is a long established independent charity for health and social care.

arrow Patient and Public Involvement: Resource for Researchers
Parkinson's UK has launched the resource as part of an on-going project to increase the support they provide for researchers to effectively involve the perspective of patients and carers in research.

arrow Patient Voice South
Patient Voice South offers support and networking opportunities for anyone promoting patient and public participation in the design and delivery of healthcare.

arrow PiF toolkit 'Creating health information that works'

arrow Patient and Family-Centred Care toolkit
In partnership with the Health Foundation, the King's Fund has launched a new online Patient and Family-Centred Care toolkit

arrow Patients as Partners

arrow Patient Opinion

arrow PiF's Learning Disabilities Resource List
PiF's Learning Disabilities Resource List collates research, guidance, best practice and further contact details.

arrow Person-centred care resource centre
The resource centre, launched by the Health Foundation, is designed to help healthcare professionals implement a more person-centred healthcare service, where people are supported to more effectively manage and make informed decisions about their own health and care.

arrow Personal Outcomes Collaboration
This site has been developed to bring together a range of resources to support the development and implementation of a personal outcomes approach in health and social care.

arrow Patient & Public Involvement Reading and Resources, Patient and Public Involvement Solutions Ltd

arrow Royal College of Paediatrics and Child Health - Patients and the public

arrow Smart Guides to Engagement
Originally aimed at CCGs, they will be of interest to anyone who would benefit from working more effectively with patients and the public. 

arrow The Point of Care Foundation
The Point of Care Foundation works to improve patients’ experience of care and increase support for the staff who work with them. 

arrow Think Local Act Personal: Ten Top Tips for Co-production

arrow User Involvement in Voluntary Organisations - Shared Learning Group
The User Involvement in Voluntary Organisations Shared Learning Group (UIVOSLG) aims to encourage shared learning about user and/or carer involvement between medium and large voluntary sector organisations working within the UK.

arrow User Involvement with the Macmillan Cancer Improvement Partnership
How to get involved with the Macmillan Cancer Improvement Partnership, ways to be involved and the type of support the programme can offer.

arrow Voices Scotland
The Voices Scotland programme is delivered by Chest Heart & Stroke Scotland (CHSS). It has built a national network of people affected by chest, heart and stroke conditions to help them have their say.

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Patients Safety

arrow BMJ Quality & Safety OPEN ACCESS supplement “knowledge for improvement”
The articles cover six major areas: the structure of improvement knowledge; discovering and defining sources of evidence; the social determinants of action; the importance of cross-disciplinary work; the challenges of professional education; and rethinking methods of inference.

arrow BMJ Quality & Safety 'Human factors and ergonomics and quality improvement science: integrating approaches for safety in healthcare'


arrow E-learning for Harm Free Care
E-learning for Harm Free Care is part of an e-learning Department of Health programme which provides high quality content free of charge for the training of the NHS workforce across the UK.

arrow FallSafe falls prevention resources

arrow Global Patient Safety Alerts

arrow Guys and St Thomas' NHS Foundation Trust: Patient Safety Card and Film Safety Collaborative Manual
Guy's and St Thomas' award-winning 'airline style' patient safety card is available for all NHS trusts as well as a short film, based on the safety card. The card and the video are intended to help patients stay safe while they are in hospital.

arrow Healthcare Quarterly, Patient Safety Papers

arrow Health Foundation's Patient Safety Resource Centre

arrow Health Foundation's Learning Report 'Continuous improvement of patient safety, The case for change in the NHS'

arrow JAMA article 'Deciphering harm measurement'

arrow Journal of Health Services Research and Policy open access supplement on patient safety

arrow Learning from Error - video and booklet

arrow Patient Safety Collaborative Manual
The main aim of this manual is to support those general practices engaged in the patient safety collaborative to provide safer care.

arrow Patient Safety First

arrow Patient Safety and Quality - An Evidence-Based Handbook for Nurses

arrow Patient Safety Institute Canada - The Safety Competencies

arrow Patient Safety Institute Canada - the Canadian Disclosure Guidelines

arrow Patient Safety Institute Canada - Incident Analysis

arrow Patient Safety Institute Canada - Effective Governance for Quality and Patient Safety

arrow Patient Safety Institute Canada - Home Care Safety

arrow Patient Safety Institute Canada - Patient Safety and Incident Management Toolkit

arrow Patient Safety Toolkit for General Practice

arrow Paper 'What is preventable harm in healthcare? A systematic review of definitions'

arrow RCN online learning course: Making Sense of Patient Safety

arrow Root Cause Analysis - Department of Health, Government of Western Australia, Root Cause Analysis Form

arrow Root Cause Analysis - GP risk Management Tutorials, Root Cause Analysis
An excellent on-line tutorial by Geraint Lewis, Primary Care Risk Adviser, National Public Health Service for Wales

arrow Root Cause Analysis - Building Patient Safety Skills, Common pitfalls when conducting a root cause analysis
This article presents common pitfalls when conducting a root cause analysis and although examples used relate to medication incidents the issues discussed are applicable to all types of incidents.

arrow Safety and Improvement Educational Resources: A toolkit for delivering safe, effective and person-centred care
This NHS Education for Scotland resource is available to Health and Social Care teams to help promote individual, collective and organisational learning. The main purpose of the tools and techniques described is to support everyday performance and wellbeing at work and help enhance the patient and client experience of care.

arrow The Joint Commission

arrow WHO Collaborating Centre for Patient Safety Solutions

 

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Prison & forensic health

arrow The Military Human: Understanding Military Culture and Transition CPD Impact Report

arrow Launch of the Yorkshire and Humber Offender Health Research Community - event summary

 

 

 

 


 

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Self-management of long-term conditions

arrow A practical guide to self-management support: Key components for successful implementation

arrow A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions
Published in the NIHR Journals Library and featuring research commissioned by HS&DR, this study involved a rapid, systematic overview of the evidence on self-management support in people with 14 diverse, exemplar long term conditions.

arrow Chest Heart & Stroke Scotland

arrow Coalition for Collaborative Care
The Coalition for Collaborative Care (C4CC) has people with long-term health conditions at the heart of its powerful alliance and brings together some of the sector's most influential national groups and organisations

arrow COSMIC resources
The Champion of Self Management has a remit to promote Self Management support and initiatives as forming an effective pathway of care for people living with long term conditions in Scotland.

arrow DH Policy Research Programme Research Initiative for people with Long term neurological conditions
This research programme has been initiated by The Department of Health to assist the implementation of the NSF.

arrow Diabetes person-centred care resources

arrow Glycosmedia
a website that is dedicated to bringing a free, non-promotional, editorially independent e-mail newsletter to a global audience about developments and news in diabetes, and is primarily aimed at health professionals.

arrow Improving Chronic Illness Care

arrow  Living well with dementia: A National Dementia Strategy Good Practice Compendium

arrow  My Lungs My Life

arrow New tools for helping care for people with Long Term Conditions Diabetes

arrow Person-centred care around the world tool
This useful directory tool highlights the leading international centres working on similar aspects of person-centred care to the Health Foundation. The tool can help to identify person-centred care research, measurement and implementation 'hot spots' in different settings globally, enabling collaboration.

arrow Right Insulin, Right Time, Right Dose for Type 2 diabetes - a toolkit for optimal delivery

arrow Self Care Forum

arrow Top Tips for the Self Management of Lymphoedema

Materials from NIHR Showcase seminar on Self-Management, 13 April 2015, Glasgow Caledonian University

arrow PRISMS: Practical systematic Reviews in Self-Management Support
presentations by Professor Steph Taylor and Dr Gemma Pearce

arrow The 'Self-Man' Review: How effective, accessible & acceptable are self-management support interventions for men with long-term conditions?
presentation by Paul Galdas

arrow Can self-management support reduce health care utilisation without compromising patient outcomes?
presentation by Maria Panagioti and Peter Bower

arrow Research article 'The accessibility and acceptability of selfmanagement support interventions for men with long term conditions: a systematic review and meta-synthesis of qualitative studies'

arrow Research article 'The effectiveness of self-management support interventions for men with long-term conditions: a systematic review and meta-analysis''

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Service Improvement among Allied Health Professionals

Materials from the AHP service improvement projects as part of the (English) Department of Health's Service Improvement Programme for AHPs

arrow AHPs Service Improvement Projects Poster
the poster summarizes some of the achievements of the AHP SIP

AHP service improvement projects final reports

arrow Self-referral to Physiotherapy with 'Same Day' Advice, Triage and Signposting
Project Lead: Navroz Amlani, Lincolnshire Community Health Services

arrow  Podiatry Department Ensuring the appropriate referral of diabetic patients to the podiatry department
Project Lead: Katie Ring, West Kent Community Health

arrow  Remodelling the provision of bathing assessments in Northumberland
Project Lead: Louise Lewis, Northumberland Care Trust

arrow  University Hospitals of Leicester: GP Direct Access in Orthotics
Project Lead: Julie Croysdale, University Hospitals of Leicester

arrow  Improve MSK Therapy Services by self referral, condition specific pathways and reduced waits
Project Lead: Patrick Harding, NHS Barnes

arrow  Warrington Acquired Brain Injury Team: Developing an integrated health and social care service for Acquired Brain Injury
Project Lead: Wendy Jolley, NHS Warrington

arrow  Early referral from Acute to Community Outreach Handover Visits for stroke patients with complex rehabilitation needs
Project Lead: Andrea Reid, East Kent Hospitals University NHS Foundation Trust

arrow  Hampshire Community Health Care Children's Therapy Service ‘Parent Led' Therapy Service Improvement Project
Project Lead: Katie Linaker, Hampshire Community Health Care

arrow Wheel Chair Services
Project Lead: Tania Tulloch, North Yorkshire and York Community and Mental Health Services

arrow Increasing Social Inclusion for Disabled Children by Reducing Waiting Times for Wheelchair Service: Posture and Mobility Centre, Heywood Middleton and Rochdale Community Healthcare
Project Lead: Lindsay Thompson, Heywood Middleton and Rochdale Community Healthcare

arrow  Developing a Standard Wheelchair Service for Children Delivered Close to Home by Local Clinicians in Cornwall and the Isles of Scilly
Project Lead: Alison Roberts-Davies, Cornwall and Isles of Scilly NHS

arrow  Improving access times to occupational therapy services for children and young people to achieve the 18 week RTT
Project Lead: Julie Brotherton, Coventry Community Health Services

arrow Adding Value to the Occupational Therapy Care Pathway for Children with Developmental Coordination Disorder (DCD)
Project Lead: Jenny Berry, Calderdale and Huddersfield NHS Foundation Trust

arrow Improving access, increasing equity and decreasing duplication for children, young people and their families through integrated Occupational Therapy practice
Project Lead: Caroline Hart, Hertfordshire Community NHS Trust and Hertfordshire County Council

arrow  Derby and Derbyshire Physical Literacy Project
Project Lead: Kathryn Hughes, NHS Derby City

arrow  Level 4 Paediatric Weight Management Service
Project Lead: Janice Clarke, Heart of England NHS Foundation Trust

arrow  Transforming the care pathway for childhood obesity services in South West Essex
Project Lead: Melody Williams, South West Essex PCT

arrow Children's Speech and Language Therapy Service
Project Lead: Jane Poupart, West kent Community Health

arrow Developing a Preventative Pathway for School-Aged Children with Speech, Language and Communication Needs
Project Leads: Janet Harrison, Deanne Rennie, Leicester Community Health Service

arrow Improving the child and family's experience of a paediatric speech and language therapy service
Project Lead: Jane Speake, Cambridge Community Services

arrow Children's Scoliosis Service
Project Lead: Heather McDowell, Royal National Orthopaedic Hospital

arrow To eliminate unnecessary delays in the safe transfer of care of patients from acute therapy teams to community services by improving the quality of information flow
Project Lead: Jill Foreman, North Tees and Hartlepool NHS Trust

arrow Improving the patient journey through the specialist tertiary adolescent chronic fatigue service back to primary and secondary care
Project Lead: Catherine Carey, University College Hospitals NHS Trust

arrow Central Referral Management and Booking
Project Lead: Lorraine Tostevin, County Durham and Darlington Community Health Services

arrow Primary Care Brief Intervention Physiotherapy Pain Programme
Project Lead: Liz Paddock, Buckinghamshire Healthcare Trust

arrow To develop the competencies and skills of the Allied Health Support Workers to assist in reducing waiting times for Physiotherapy Out-Patient Services activity across the Heart Of England Foundation Trust
Project Lead: Julie Hunter, Heart of England Foundation Trust

arrow Self Referral to Physiotherapy for Musculoskeletal Conditions: initially with Drayton Practice, then with a view to extend across Portsmouth’s remaining 28 practices
Project Lead: Joanna Robinson, Solent NHS Trust

Materials from Phase 1 of the AHP service improvement project

arrow AHP Service Improvement Project - the story so far

Materials from Allied Health Professions Service Improvement Projects Phase 1 Regional Events

arrow Regional Event Agenda
arrow Spotlight on Service Improvement
arrow Getting the most from the day
arrow Learning set A Turning data into knowledge and action resource pack
arrow Learning set B Project management resource pack
arrow Learning set C Process and service redesign
arrow Learning set D Impact and influence resource pack
arrow Learning set E Capturing and sharing learning resource pack
arrow Capturing lessons learned handout

AHP Service Improvement Case Studies

arrow AHP Service Improvement in York Hospitals Trust
Two service improvement projects in York Hospitals NHS Foundation Trust are working towards integrated physiotherapy and occupational therapy services, and have already significantly improved access to services.

Links to other resources

arrow The NHS quality, innovation, productivity and prevention challenge: an introduction for clinicians
This booklet has been published to support clinical teams and NHS organisations to meet the quality and productivity challenge and provides ways in which NHS clinicians can all get involved in shaping the response locally. 

arrow How-to Guide: Multidisciplinary Rounds
Developed by the Institute for Healthcare Improvement (Cambridge, Massachusetts, USA). This guide describes the key components of multidisciplinary rounds, potential impact on outcomes, examples of success, and tips for successful implementation.

arrow Early Implementation of AHP Career Framework using The Calderdale Framework
A report by Rachael Smith and Jayne Duffy, Calderdale Framework Project Leads, Calderdale & Huddersfield NHS Foundation Trust

arrow AHP CPD Resource
Developed by NHS Scotland. This resource aims to ensure that all AHPs are equipped with knowledge and tools that will enable them to demonstrate their fitness to practice electronically.

arrow Improvement Network
Free improvement tools available from the Improvement Network, which are accessible to public sector managers and practitioners across health, local government and police sectors. The tools cover a range of 16 topics including communication, change management and partnership working.

arrow AHP QIPP Toolkits
The Strategic Health Authority AHP Leads for England have worked with NHS London who compiled the AHP QIPP Toolkits. These are designed to help commissioners design services that are of high quality whilst reducing cost. .


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